• Broadfern@lemmy.worldEnglish
    5·
    13 days ago

    Can’t speak to the others but ME/CFS is a special type of hell when you get a small remission period so

    1. Nobody believes you,

    2. You’re expected to push past your limit and

    3. It’s extra awful when it comes roaring back like a freight train to the face from stress or a virus or just because screw-you-that’s-why

    I’m sorry you’re dealing with this OP hopefully you catch a break

    • Zarobi@aussie.zoneOPEnglish
      4·
      12 days ago

      Yeah that’s a big frustration… I’m on disability, but people sometimes say, hey look you’re getting better! Go get a job! But what they don’t see is I can only do 3 small or 1 medium thing per day. My definition of small and medium probably being very conservative: a doctor’s appointment is extra large, a 15 minute walk is medium, eating breakfast is small. And I need alternating days off where I can’t do literally anything. And I’ll randomly get put down and can’t get out of bed for a month… No job would take me lol

      But this hospital visit was mostly about random severe hyper-POTS flares. My blood pressure keeps hitting 200/170 from adrenaline dumps. Hopefully someone gives me another magic pill soon before I pop like a leaky balloon lol, the hospital just sent me home