mecfs@lemmy.worldMEnglish · edit-26 months agoNew Community, If you want to be added as mod, please askplus-squarepinmessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareNew Community, If you want to be added as mod, please askplus-squarepinmecfs@lemmy.worldMEnglish · edit-26 months agomessage-square0fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 8 days agoThe grief is hard, but easier than clinging onto unrealistic hope and living a life of disappointment.lemmy.blahaj.zoneimagemessage-square14fedilinkarrow-up1109arrow-down14
arrow-up1105arrow-down1imageThe grief is hard, but easier than clinging onto unrealistic hope and living a life of disappointment.lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 8 days agomessage-square14fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-210 days ago(Also becoming disabled sucks, in big part due to society barely helping)lemmy.blahaj.zoneimagemessage-square5fedilinkarrow-up1123arrow-down118
arrow-up1105arrow-down1image(Also becoming disabled sucks, in big part due to society barely helping)lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-210 days agomessage-square5fedilink
Björn Tantau@swg-empire.deEnglish · 10 days agoyou're just imagining it - A Chronic Illness Gameplus-squarenpckc.itch.ioexternal-linkmessage-square1fedilinkarrow-up133arrow-down11
arrow-up132arrow-down1external-linkyou're just imagining it - A Chronic Illness Gameplus-squarenpckc.itch.ioBjörn Tantau@swg-empire.deEnglish · 10 days agomessage-square1fedilink
Björn Tantau@swg-empire.deEnglish · 13 days agoThursday Triumphsplus-squaremessage-squaremessage-square0fedilinkarrow-up15arrow-down10
arrow-up15arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 13 days agomessage-square0fedilink
Melatonin@lemmy.dbzer0.comEnglish · edit-213 days agoIs anyone else experiencing regular Phantosmia, or olfactory hallucination? I smell fresh baked bread, like a nice sourdough loaf, off and on throughout the day.plus-squaremessage-squaremessage-square6fedilinkarrow-up19arrow-down12
arrow-up17arrow-down1message-squareIs anyone else experiencing regular Phantosmia, or olfactory hallucination? I smell fresh baked bread, like a nice sourdough loaf, off and on throughout the day.plus-squareMelatonin@lemmy.dbzer0.comEnglish · edit-213 days agomessage-square6fedilink
Björn Tantau@swg-empire.deEnglish · 20 days agoThursday Triumphsplus-squaremessage-squaremessage-square0fedilinkarrow-up17arrow-down10
arrow-up17arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 20 days agomessage-square0fedilink
MelodiousFunk@slrpnk.netEnglish · 24 days agoSorry, our health care software is only coded to recognize one symptom at a timeslrpnk.netimagemessage-square15fedilinkarrow-up1180arrow-down13
arrow-up1177arrow-down1imageSorry, our health care software is only coded to recognize one symptom at a timeslrpnk.netMelodiousFunk@slrpnk.netEnglish · 24 days agomessage-square15fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 25 days agoA woman from Canada with severe ME has been approved for MAiD - but she wants to liveplus-squarewww.thecanary.coexternal-linkmessage-square13fedilinkarrow-up133arrow-down19
arrow-up124arrow-down1external-linkA woman from Canada with severe ME has been approved for MAiD - but she wants to liveplus-squarewww.thecanary.coFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 25 days agomessage-square13fedilink
Björn Tantau@swg-empire.deEnglish · 27 days agoThursday Triumphsplus-squaremessage-squaremessage-square1fedilinkarrow-up19arrow-down10
arrow-up19arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 27 days agomessage-square1fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month ago3 year waiting period, have to hire a lawyer, a million forms to fill out, it's a nightmare!lemmy.blahaj.zoneimagemessage-square24fedilinkarrow-up1381arrow-down113
arrow-up1368arrow-down1image3 year waiting period, have to hire a lawyer, a million forms to fill out, it's a nightmare!lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square24fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agoHow the Healthcare system fails chronically ill peopleplus-squarewww.whitneydafoe.comexternal-linkmessage-square1fedilinkarrow-up149arrow-down10
arrow-up149arrow-down1external-linkHow the Healthcare system fails chronically ill peopleplus-squarewww.whitneydafoe.comFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square1fedilink
Björn Tantau@swg-empire.deEnglish · 1 month agoThursday Triumphs Friday Festivitiesplus-squaremessage-squaremessage-square0fedilinkarrow-up15arrow-down10
arrow-up15arrow-down1message-squareThursday Triumphs Friday Festivitiesplus-squareBjörn Tantau@swg-empire.deEnglish · 1 month agomessage-square0fedilink
graphito@sopuli.xyzMEnglish · edit-21 month agoLiving Long-Term with Mental lIlness - The School of Life | 4 minsplus-squarewww.youtube.comexternal-linkmessage-square0fedilinkarrow-up14arrow-down10
arrow-up14arrow-down1external-linkLiving Long-Term with Mental lIlness - The School of Life | 4 minsplus-squarewww.youtube.comgraphito@sopuli.xyzMEnglish · edit-21 month agomessage-square0fedilink
jordanlund@lemmy.worldEnglish · 1 month agoI describe it like this...plus-squaremessage-squaremessage-square3fedilinkarrow-up125arrow-down13
arrow-up122arrow-down1message-squareI describe it like this...plus-squarejordanlund@lemmy.worldEnglish · 1 month agomessage-square3fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agoStory of my Life (I have an incurable lifelong illness)lemmy.blahaj.zoneimagemessage-square11fedilinkarrow-up1171arrow-down13
arrow-up1168arrow-down1imageStory of my Life (I have an incurable lifelong illness)lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square11fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agoWhenever I mention to someone I'm disabledlemmy.blahaj.zoneimagemessage-square8fedilinkarrow-up1117arrow-down14
arrow-up1113arrow-down1imageWhenever I mention to someone I'm disabledlemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square8fedilink
ComradeSharkfucker@lemmy.mlEnglish · 1 month agomy partner has been diagnosed with pots, what should I know?plus-squaremessage-squaremessage-square3fedilinkarrow-up116arrow-down12
arrow-up114arrow-down1message-squaremy partner has been diagnosed with pots, what should I know?plus-squareComradeSharkfucker@lemmy.mlEnglish · 1 month agomessage-square3fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agoShe's rightlemmy.blahaj.zoneimagemessage-square43fedilinkarrow-up1328arrow-down19
arrow-up1319arrow-down1imageShe's rightlemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square43fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-21 month agoDoing Harm: How The Remnants of “Hysteria” Impact Chronically Ill Peopleplus-squarerootedinrights.orgexternal-linkmessage-square2fedilinkarrow-up16arrow-down10
arrow-up16arrow-down1external-linkDoing Harm: How The Remnants of “Hysteria” Impact Chronically Ill Peopleplus-squarerootedinrights.orgFundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-21 month agomessage-square2fedilink