• Eeyore_Syndrome@sh.itjust.works
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    8 days ago

    Like fibro is a living hell.

    I’m 5 years in of diagnosis. Got it October before covid hit in March. But my symptoms first started in April that year, after my brother died.

    I can no longer Cook for a living.

    I can barely cook for myself anymore.

    I have a sitting stool in my kitchen.

    I usually have to choose between a shower, doing an errand or going to the laundromat in any one day now, doing more would put me out the next day.

    I haven’t ridden my bicycle in a long time because “maybe I’ll feel up to it another day” never arrives sigh.

    I’m on baclofen to minimize my throat/hand/foot/leg craps I started suffering from too.

    I’m actually legit afraid to ever yawn now, or stretch anything.

    Be funny If I could weaponize it and share with people that actually deserve it 🙊🙉🙈.

    • FundMECFSResearch@lemmy.blahaj.zoneOPM
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      8 days ago

      Be funny If I could weaponize it and share with people that actually deserve it 🙊🙉🙈.

      I feel the same way. I have ME/CFS. I’ve lost the ability to speak, I’m permanently bedridden, I’m tubefed, I’ve lost everything in life.

      And still some c*nts have the audacity to say “you’re probably just anxious”, “I wish I could spend all day in bed like you”, “you need to start trying to get better” etc.

      If I could send them just one day of living with my illness ahahha. They would cry. The shit I deal with on a daily basis would have sent me to the ER 5 times over before I became disabled.