Or it could be the strict formalization of psychiatric studies, combined with the more broad based diagnosis and categorization of the school aged working class.
Is autism diagnosis really that formalized?
I was tutoring psych the other day, and the book the student had still claimed that women were much less likely to be autistic. It’s fascinating how many women don’t get diagnosed well into their thirties. It makes me really wonder what is being used to diagnosis autism, and how much of it might be affected by the tester’s bias and beliefs.
(Personally, I’ve always wanted to be tested but the 12 month plus waiting list and the $5k not covered by insurance means that I’ll probably continue going through the rest of my life without any form of work accommodation…)
Yes, particularly when diagnosed in childhood (especially before middle school). I have a giant ass comment talking about the historical context of changing rates. In theory (like, in this political context who the fuck knows) in order to get formal support as a student or accommodations as an employee, you need a diagnosis. Letters from health providers are part of the process, though some providers are more lax.
As a hack, @andros_rex@lemmy.world a LOT of the accommodations for ADHD mirror those that are used for those with low support needs and are Autistic, and the comorbidity is really really high (so it might be both). Formal, validated, ADHD screenings can be done online for less than $500 if you have a doctor that will work with you. It might be worthwhile thinking about what kinds of work accommodations you would like, and reviewing ADHD DSM requirements, to see if you might be able to wiggle through that way.
(Personally, I’ve always wanted to be tested but the 12 month plus waiting list and the $5k not covered by insurance means that I’ll probably continue going through the rest of my life without any form of work accommodation…)
Not unusual for kids to be picked out in grade school and referred for further diagnosis. But yeah, I can definitely get not wanting to bother going out of pocket on something like that as an adult. Not unless there’s a pressing need.
True facts. Unlike things like Fragile X Syndrome that have clear sex-based biological mechanisms behind prevalence rate differences (see below for example), I think the gender discrepancies don’t actually exist for most Disabilities. Raise all kiddos without racialized and gendered societal expectations, and prevalence rates will mostly come out in the wash (this is a broad sweeping statement that completely lacks nuance, but work with me).
(Example: people with 1 X chromosome present Fragile X Syndrome more frequently because there is only 1 X chromosome to carry the genetic load of the X chromosome, typically people with 2+ X Chromosomes present less (unless multiple copies carry it) because the non-affected X chromosomes can pick up the slack).
Traits I have that would be considered “ND” were considered individual personality flaws which I needed to work to correct. Not making eye contact was an intentional behavior I was doing to be disrespectful. Being direct = disrespectful. Skipping school/refusing to leave home because of sensory issues and bullying = juvenile detention.
I think a substantial problem with diagnosis is that this is typically how ND women are treated. I’m a survivor of the TTI so that is an aspect - they never tested me, because they didn’t think girls could have it!
Oh absolutely, and I’m sorry if you thought I was trying to invalidate your experiences at all, that was not my intention. That combination of ‘only boys have it’ and the (again gendered behavior expectations) for afab folx is killer.
If I come across as offended or aggressive, I’m just working out my anger on seeing that in that kids textbook I think - it also had that idea about it being an excess of testosterone or something? I’m also certified to teach special education, and was taught and tested on a lot of ideas that were just… incorrect. I’ve developed a reputation at places for being good with kids on the spectrum, just because I understand how to accommodate basic autonomy and that nonverbal children are still capable of thought.
There’s so much bad science around ASD, that I would really like to go through the testing process both to get something formal and to see what I think about it.
Is autism diagnosis really that formalized?
I was tutoring psych the other day, and the book the student had still claimed that women were much less likely to be autistic. It’s fascinating how many women don’t get diagnosed well into their thirties. It makes me really wonder what is being used to diagnosis autism, and how much of it might be affected by the tester’s bias and beliefs.
(Personally, I’ve always wanted to be tested but the 12 month plus waiting list and the $5k not covered by insurance means that I’ll probably continue going through the rest of my life without any form of work accommodation…)
Yes, particularly when diagnosed in childhood (especially before middle school). I have a giant ass comment talking about the historical context of changing rates. In theory (like, in this political context who the fuck knows) in order to get formal support as a student or accommodations as an employee, you need a diagnosis. Letters from health providers are part of the process, though some providers are more lax.
As a hack, @andros_rex@lemmy.world a LOT of the accommodations for ADHD mirror those that are used for those with low support needs and are Autistic, and the comorbidity is really really high (so it might be both). Formal, validated, ADHD screenings can be done online for less than $500 if you have a doctor that will work with you. It might be worthwhile thinking about what kinds of work accommodations you would like, and reviewing ADHD DSM requirements, to see if you might be able to wiggle through that way.
Certainly moreso than a generation ago.
Not unusual for kids to be picked out in grade school and referred for further diagnosis. But yeah, I can definitely get not wanting to bother going out of pocket on something like that as an adult. Not unless there’s a pressing need.
Primarily children of one gender presentation, to this day. Which again, makes me very curious as to the validity of the “autism” construct.
True facts. Unlike things like Fragile X Syndrome that have clear sex-based biological mechanisms behind prevalence rate differences (see below for example), I think the gender discrepancies don’t actually exist for most Disabilities. Raise all kiddos without racialized and gendered societal expectations, and prevalence rates will mostly come out in the wash (this is a broad sweeping statement that completely lacks nuance, but work with me).
(Example: people with 1 X chromosome present Fragile X Syndrome more frequently because there is only 1 X chromosome to carry the genetic load of the X chromosome, typically people with 2+ X Chromosomes present less (unless multiple copies carry it) because the non-affected X chromosomes can pick up the slack).
I was raised female.
Traits I have that would be considered “ND” were considered individual personality flaws which I needed to work to correct. Not making eye contact was an intentional behavior I was doing to be disrespectful. Being direct = disrespectful. Skipping school/refusing to leave home because of sensory issues and bullying = juvenile detention.
I think a substantial problem with diagnosis is that this is typically how ND women are treated. I’m a survivor of the TTI so that is an aspect - they never tested me, because they didn’t think girls could have it!
Oh absolutely, and I’m sorry if you thought I was trying to invalidate your experiences at all, that was not my intention. That combination of ‘only boys have it’ and the (again gendered behavior expectations) for afab folx is killer.
If I come across as offended or aggressive, I’m just working out my anger on seeing that in that kids textbook I think - it also had that idea about it being an excess of testosterone or something? I’m also certified to teach special education, and was taught and tested on a lot of ideas that were just… incorrect. I’ve developed a reputation at places for being good with kids on the spectrum, just because I understand how to accommodate basic autonomy and that nonverbal children are still capable of thought.
There’s so much bad science around ASD, that I would really like to go through the testing process both to get something formal and to see what I think about it.