• Father_Redbeard@lemmy.ml
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    4 months ago

    Are people having that many hurdles for official diagnosis? Genuinely asking. Mine was with my primary care doc, $100 out of pocket for the visit, and whatever the meds cost. There was one questionnaire and total took about 30min from start of visit to prescription. That said, first meds aren’t helping at all so I’ll need to go back and see what other options there are, if any.

    • Monument@lemmy.sdf.org
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      4 months ago

      Possibly state-by-state, practice specific, or insurance company policies.

      My doctor told me that in my state a psychiatrist has to test and diagnose. The testing was covered by my insurance (if you have a referral), but the wait list is a problem.

      • Father_Redbeard@lemmy.ml
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        4 months ago

        Wow. I had no idea that was a thing. I’m glad I asked then. Opens my mind to how hard it can be for other folks. That’s really awful.

        • Monument@lemmy.sdf.org
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          4 months ago

          It took me over a year to get a diagnosis from my initial inquiry with my doctor. She gave me a referral (otherwise it would not be covered by insurance), and a list of practices that did ADHD testing (not every psychiatrist does it), and I stumbled on picking a place for a few months. When I picked a place, their wait list was 3 months and I never pursued testing.
          The testing process in my area takes a few hours - my wife’s took 3 on a video chat, and it took about 3 months for them to send their report to her doctor.
          Cut to a year later, my old doctor had retired, and I had a new one. She gave me a new referral for testing, but cautioned me that the wait list for most places was now 6 months. Checking around with other folks in my area confirmed this. But while at that appointment, she recommended an online company, who - after a few weeks of weighing options, I did pursue, and tested/evaluated me (no video chat, just an online survey - about half was written responses - that took about 4 hours to complete), and got results back in a week. It was $180, and may have been eligible for a reimbursement from insurance, but I have ADHD, so I never bothered.

          And like - I guess I appreciate it. It does seem like whoever made those policies made them so that the diagnosis won’t be given lightly, but it creates issues. I sorta feel that I cheated, but my test was actually reviewed by a psychiatrist, and when I told friends of my diagnosis, the most common response was ‘Duh. You didn’t know?’ - so even though the online approach is sorta ‘cheating,’ I know that it’s definitely a warranted diagnosis in my case.

          • Father_Redbeard@lemmy.ml
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            4 months ago

            Yeah, that’s terrible. I do agree there needs to be some checks and my doc might be an annomaly in regards to dishing out pills for everything. But while the course so far hasn’t helped me, I’m grateful I don’t have to go through so much just to start. I’m sorry you’ve had to deal with that.

    • yuri@pawb.social
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      4 months ago

      Folks, really seriously genuinely, talk to your regular ass doctor about a diagnosis if you’re looking to get assessed. Mine just gave me the assessment for no charge because I was already there for something else.

      He even said if I wasn’t happy with the results he would write me a referral to whoever and just send it to my insurance like a specialist referral, so they’d at least HELP even if it’s out of network.

      • kerf@lemmy.world
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        4 months ago

        After waiting several weeks for my appointment my “regular ass doctor” told me I couldn’t have adhd because I could look him in the eyes and hold a conversation. So, thanks, I’m cured?

        • yuri@pawb.social
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          4 months ago

          I mean, it’s no panacea, but still worth checking before jumping straight to a potentially pricey specialist. Unfortunately some doctors are still dipshits.

          I’m sorry you got invalidated by a medical professional, it’s dishearteningly an all too common experience for neurodivergent folk. I hope it didn’t turn you off the idea of treatment too bad. There are good doctors out there, who care and will listen and won’t just talk down to you.

          • kerf@lemmy.world
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            4 months ago

            After about two or three years since that first I’ve now made my third attempt to get help (Second one said 'you can’t have adhd because you’ve finished university and have a job).

            I’ve gotten one step further, but if I am accepted to do a real evaluation it will be more than a years wait time. Public mental healthcare in Sweden is a joke. The wait time alone makes me want to just do it in private care but I can’t justify the expense in my current life situation

    • Kiloee@discuss.tchncs.de
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      4 months ago

      I live in a country with socialised healthcare.

      I am at the point that I am looking into diagnosis mainly to be able to get meds because just living is hard. I remember being diagnosed as kid, but I might have a mixed up memory with my brother getting diagnosed and the IQ assessment I had.

      I walked into my GP, who is usually very compassionate and even understanding of mental health things telling them that, speaking about what I struggle with and they go „it is a trend diagnosis too and I personally know a man that says he doesn’t feel a difference with meds“ and give me a referral for a neuropsychologist. No expedited, no like guaranteed thing (there are a kind of slots for that). Tbf they named two good options they can recommend even if they aren’t allowed to show bias. My first „checking if we can help you“ date is on the 8th of August, and I filled their entry questionnaire over two weeks ago. Mind that is a first date, nothing in the way of diagnosis and they might say they can’t help me.

      The only other option is to either pay out of pocket for it (there are loads of private only doctors for it, in fact I did accounting for one of them), which I don’t want for two reasons: not having money laying around and not wanting to just walk out with a predetermined diagnosis. I am pretty sure I have ADHD, but autism plays a role as does childhood trauma and other things. So just treating the ADHD part could be detrimental. Or go call some helpline/emergency line and tell them I am suicidal and getting institutionalised. Judging by the treatment my childhood best friend got for that, I‘ld rather not.

      I am female and females present differently, so that plays a role too.

      My brother didn’t get treated btw, because my mother believed the stories about ADHD vanishing with puberty and that not happening when people get meds. He is also seeking diagnosis currently.

    • acetanilide@lemmy.world
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      4 months ago

      Yes, I did.

      • No one noticed for years (I am a girl and girls often have different symptoms than boys)
      • I asked my psychiatrist for help with work accommodations due to concentration issues and they wanted me to go to a neuropsychologist (thousands of dollars with insurance)
      • Switched to a different provider who immediately diagnosed me after a single page questionnaire. Got meds. No drug test required.
      • Ended up switching to another provider for reasons - they wanted me to get tested again because they didn’t like the prior test ($$$).
      • Got the diagnosis but still couldn’t refill the original meds I was on because of other health issues. Went untreated for about a year before receiving clearance from a specialist. Drug tests required monthly ($$$).
      • Had to switch providers yet again for reasons - they almost made me get tested again but I somehow convinced them not to. Got meds. Drug tests every few months ($$$).
      • Father_Redbeard@lemmy.ml
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        4 months ago

        Thank you for sharing. This has been incredibly eye opening for me. I’m sorry that it’s been so rough for you.